Links

Please help out a friend with SMA.  She would like to buy a car and have it modified so that she can put her wheelchair in it and drive it with hand controls.  CLICK HERE to help Amanda.

B4SMA is an organization that gives hand-made blankets a quilts to children with SMA.

http://www.fsma.org/ - Families of Spinal Muscular Atrophy.  A very comprehensive website with a great deal of information concerning SMA.

http://www.smafoundation.org/ - Another, very comprehensive website.

Shelley O'Brien - an absolutely wonderful singer/piano-player that Emma befriended during our Cruise.

A decent description of ventriculomegaly.

A description with ultrasound photos of aqueductal stenosis.

A Google search will also turn up much valuable information.

The Pulkrabeks are another family with a child that has been diagnosed with SMA.

Melissa's page on SMA is written by an adult with SMA.

Bristol Dyno - Emma's proud sponsor (and Daddy's business.)