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Welcome to Emma's website.
IMPORTANT: Believe it or not, but Emma's guestbook has been getting spammed like crazy. In order to prevent bots from posting any more and making links to adult websites, I have password-protected the guestbook. Use "emma" and "hope" as the username and password respectively. Check the "Remember my password" box, and you shouldn't have to enter the username and password again.
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Updates: 08/12/10 Please donate to our Walk-n-Roll event on Oct 24th: http://www.fsma.org/ctwalknroll2010 11/29/09 Website: I just uploaded almost 500 new pictures. Galleries 58 - 67 are new. 09/10/09 Wow - I haven't touched this site in a while. I need to upload quite a few more pictures. Amy and I are both on Facebook every once in a while, and we upload photos that way. If you need your fix, look for us there. 04/15/09 Website: Yes, I know - I need to upload some pics. I did upload the 2008 Christmas letter. 01/11/09 Website: Pictures from our Thanksgiving trip to Disney uploaded. 10/16/08 Website: Yeah - it's been a while. I just uploaded Photo Galleries 52 - 57. Gallery 52 starts with Halloween of '07, so that makes it a year's worth of pics. I also added another home improvement gallery. 02/14/08 Website: Starting to upload some videos from Disney... 02/09/08 Website: The other half of the Disney photos are uploaded. 02/07/08 Website: About half of the Disney photos uploaded. 01/26/08 - 02/02/08 Trip to Disney World. 12/28/07 Website: Added the 2006 & 2007 Christmas letters. 10/01/07 Website: Finished Photo Gallery 50, added Photo Gallery51. 09/28/07 Elite Royalty Pageant in Waltham, MA. 09/23/07 Website: Added 2 more videos. 09/18/07 Website: Finished Photo Gallery 49; added Photo Gallery 50: added 3 more videos. 09/18/07 Emma visits the set of Good Morning America and gets to watch Gloria Estefan play some songs. 09/16/07 Website: Finished Photo Gallery 45; added Photo Galleries 46-49; added one more video (school bus.) 09/15/07 Her 4th birthday, and a party at Imagine Nation in Bristol with 18 of her friends. 09/09/07 NES New England State pageant in East Hartford, CT.
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This site is a celebration of everything that is Emma Hope. Emma has had to endure far more than any little girl should at this age, yet she still remains the most wonderful child the world has ever known. She was diagnosed with ventriculomegaly (internal hydrocephalus) that was caused by aqueductal stenosis before she was born, and she had a VP shunt implanted in her brain when she was only two days old. Before she turned one, she started physical therapy to help with her muscle weakness, and she continues with physical, occupational, and aqua therapy to this day. Early in 2005, when she was about a year-and-a-half old, Emma had her first seizure. After her second one a few weeks later, Emma started daily anti-seizure medicine and has been seizure-free since then (except for when we tried to wean her off of the medicine a year later.) In July of 2005, we discovered that Emma has SMA (Spinal Muscular Atrophy.) SMA is a neuromuscular disease and is the leading genetic killer of children. She does not have the most severe form of the disease, but the road ahead is going to be a challenge as she will never be able to do so many of the things that so many of us take for granted.
Please take a peek at some of the thousands of photos and videos that have been taken of Emma since she has joined us, read some of the letters that I have written, visit some of the links to other websites and learn what makes Emma so special, and be sure and sign the guestbook before you leave.
Emma thanks you.
